Monday, March 22, 2010

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Sunday, March 21, 2010

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Friday, March 12, 2010

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will always be in our hearts ... Lustfulness

Antes de vivir en nuestro corazón ella vivía en la pancita de su mamí, sería la princesa todos y tendría mucho amor para recibir. Se sentía hermoso como pateaba cuando platicabas con ella en su pancita y se movía, vivía en su propio mundo protegida de las crueldades que existen fuera. Era esperada y amada por todos. Tenía ya una vida planeada y hecha by people who loved her since I knew of its existence, filling in advance of presents, kisses and good wishes.

finally born! At 8 months, but despite living in a prominent belly, weight 1.500 grams, was an eternal concern and anguish, but we wanted to be a premature baby and admitted that after a few days everything will improve. But it was not ...

Over the days she was diagnosed with "Edwards syndrome," or "trisomy 18", babies with this disease not exceed a year of life, because it is a birth defect that affects all her body and its organs are not developed as a "normal" baby. It is a rare but more common than you wanted, as there is a possibility of 1 in 6.000 newborns, and is more common among mothers over 35 years. Is detectable from the first weeks of pregnancy, but this diagnosis is sad and serious as the disease is incompatible with life and are cautioned not to prolong it measures the infants suffering is immeasurable.

We ask God to help and protect her, we ask God for a miracle, we ask God for everything you can ask for support when you go through difficult times in life when Finally I decided to ask and what you pray for resignation to what happened, but not without a fight ...

Sometimes even for non-believers, practitioners and far from being devout, whatever God means for each of us is what is there when you need it. For me it's that strength that comes from deep in your heart to hold when you need it, to hold you when you're sliding a bottomless pit, to encourage you to keep going when you think you've lost everything, is what drives you forward when you feel and think that there is nothing worth fighting for, that's God, much more than a friend or a belief, is what I have to believe when I have nothing to believe or because to do so.

But sometimes it hurts more than letting go of people that make you happy you have to be realistic and accept when you can not more, especially because he was suffering and she is not you, her heart was too small (they were going to operate from the heart but not enough time), their lungs had many defects, in the nursery crying but could not hear anything, it hurt when she cried, she was suffering! There is nothing worse than the helplessness of seeing your family suffer, suffer and mourn helplessly. There is only letting them go.

God took the little angel to rest, that's how the bye, as the angel who was with us for a long time and filled us with hope and love, and still lives in our memories. She was a fighter and was a mainstay of teaching: showed us that no matter if it's a day, a week or a year, worth fighting for life de bebes con trisomía 18 y tener una luz de esperanza en las penumbras, no importa cuanto te diga la mayoría que esta enfermedad era incompatible con la vida. Ella murió cuando su corazoncito no podía más, se fue a un lugar donde no sufre y puede ser feliz. Gracias a ella por habernos regalado la oportunidad de conocerla. Gracias por enseñarnos a ser fuertes, apoyarnos y aceptar lo que venga, enfrentándonos de las adversidades que se presenten.

Las grandes esperanzas están ocultas en las tristezas que te da la vida.

Para ti pequeña Sofia (junio/2008).